We are stuck between a rock and a hard place. Josephine’s seizures can’t be controlled regardless of medication. If we stop medication the amount of seizures will most likely caused death according to the doctors. We had a meeting with the team of doctors and had to decide what to do. The amount of sedation from seizures‘s medication causes Josephine to sleep. She has not woken up since last Friday, a week from today, when the procedure took place. She is still breathing with the ventilator. We are keeping her comfortable and I hope she is having beautiful dreams of all beautiful places we visited, birthdays and holidays we spent together as a family. I hope she knows and feels how much we love her. This is my favorite picture of our Pepa as a child.