First intra arterial chemo and Josephine did fine. She will need the Omaya catheter to treat the ventricles as the disease had begun to spread...I managed to coordinate with a neurosurgeon in NYC who will install the Omaya catheter needed to deliver the medicine in the ventricles. Hope the doctor doesn’t change his mind .....it has been very hard to get help at home.
I am so proud of Pepa (Josephine), unable to smile due to facial palsy and 30 pounds overweight due to steroids, she remains in good spirits, cracking jokes, and looking forward to go back to school. We will continue to look into immunotherapy in addition to the current chemo she is receiving.
Thanks for your continued support and prayers. Please don’t forget to share and ask for the most needed help we need as treatments are not sustainable. It’s amazing that in this day and age, a parent has to be in this predicament to take care of a child...thank you