February 23, 2019

This month is the 13th marker since symptoms started and the 12th month marker since Josephine’s diagnosis. She had many losses since then but she is here with us and we are blessed. We won a few battles but the war still on. She feels pretty lonesome without being able hear. Communication is a challenge, eating is a challenge, walking is challenge, smiling an impossibility. Lost 20 pounds since December when we decided to take her off steroids completely. We rely on CBD now.
Thank God for these therapy pets we have at home. They always come handy.
Heading to Monterrey this coming week. Thanks to God for those good doctors there...thank God and Germany for her weekly ONC201.
And thank you for your support and following.