12/14/2021 0 Comments July 22, 2018This is post from DIPG Support and Awareness Group
“What are these? Intimidating. Traumatic. Uncomfortable. These are radiation masks for children. It's "worn" during radiation for 30 days. 5 days a week for 6 weeks. The mask is fitted specially to the child's face and head. Then when it's go time they are bolted down to the table by this snug mask while radiation pours into their tiny brain, trying to shrink the world's worst brain tumor...DIPG. Diffuse Intrinsic Pontine Glioma. Radiation is the only standard treatment. Sometimes it doesn't work. Sometimes it gives kids a few more months. Sometimes it makes them worse. It's a gamble. But with a 0% chance of survival that gamble is important to take for many families, no matter how scary. Younger kids are sedated. For 6 weeks in a row. Can you imagine being sedated that many times?? Others are not sedated and instead lay there awake and aware and held down in place. Their minds left to wander, worry, and be damaged. This mask exists because of the lack of funding for pediatric cancer research. It exists because kids only get 4% of national funding. There is no money to find a better option because the government refuses to give more attention and compassion to our future - our children. DIPG gets practically nothing of that 4%. So children are stuck with these hideous masks and the horrible side effects of radiation. We need more funding so that better treatments can be found that are safer and more effective and less traumatic than radiation. Please urge others to wake up and pay attention to childhood cancer. Spread awareness. Write to your officials. Donate to research for DIPG. Help be a part of something that matters. Help us get to a point where we see a day that kids with DIPG don't have to wear these horrific masks anymore!!” ------------------------------------------------------------ “ What is DIPG? DIPG is a cancerous pediatric brain tumor located in the middle of the brain stem. This is no typical cancer. This is the WORST brain tumor in existence. DIPG is very aggressive, inoperable, and incurable. It takes away the ability to walk, talk, breathe, swallow, survive. In the end, children are locked in and all physical abilities are gone, but the tumor does not affect the part of the brain that produces our cognitive abilities, so the child is 100% sane, alert, and mentally aware of the torment while they progress. Most pass within 9 months. There is no cure due to lack of funding, research, or concern from our government. This is why we raise awareness! We must do more. Please research Diffuse Intrinsic Pontine Glioma, tell others about it, and then donate to research. Facebook pages and organizations dedicated to fighting DIPG: Michael Mosier Defeat DIPG Foundation The Cure Starts Now Candace's Cause Unravel Pediatric Cancer 4Ayden Strong Foundation NY/NJ Chapter The ChadTough Foundation Gabriella's Smile Foundation Making DIPG History in Monterrey Abbie's Army (UK) Fight DIPG DIPG Advocacy Group Cannonballs for Kayne Funding Neuro (UK) Lily LaRue Foundation DIPG Aidan's Avengers https://secure3.convio.net/hhsf/site/Donation2;jsessionid=00000000.app362b?df_id=2361&2361.donation=form1&mfc_pref=T&NONCE_TOKEN=11086159E0E80F13D77A197A28CC5971 More info: https://thecurestartsnow.org/impact/cancer-facts/dipg-facts https://www.stjude.org/disease/diffuse-intrinsic-pontine-glioma.html http://dipgregistry.org/clinical-trials/ www.defeatdipg.org https://www.fundingneuro.com/ dipg.org HOPE H - Have O - Only P - Positive E - Expectations www.facebook.com/dipgkids #HoldOnToHope #Hope #Dipg #MoreThan4 #FightDipg #TerminateDipg #gogrey #braincancer #gogold #DefeatDipg
0 Comments
Leave a Reply. |