12/14/2021 0 Comments June 3, 2019Tough situation we are in. An irreversible brain herniation with advanced DIPG. Doctors who want to help Josephine pass and a strong girl who wants stay and live because she is missing her 8th grade dance and graduation. So much to live for, so many lost fun times and dreams of a life that were blossoming but here we are helping her end it. I feel sick in my stomach having to come to this, as many other DIPG families in the same predicament of a dead end street with no way out. Josephine is comfortable with high doses of morphine.
This is the nightmare of 300 families every year in the United States alone with a society unaware and a government that chooses to look the other way. I am hopeful that we are changing this scenario, not for us but for your kids or your grandkids. No kid is exempt from the DIPG lottery.
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