Hope all is well with you all. We are still dealing with a lot of unclear status on Pep’s tumor activity with not much change in the images from February 28th. However, her symptoms continue to be a problem She is not eating or taking meds due to the swallowing issue being more pronounced. We opted for a G tube as it’s needed at the moment, hoping that she will recover strength with much needed nutrition and meds. The procedure was done this morning after a long sleepless night with lots of seizures. A scan showed hydrocephalus in one ventricle, the neurosurgeon took pressure off by taken liquid from the Omaya catheter.
We are still at Memorial Sloan as Josephine is still not breathing on her own after the anesthesia. An EEG is following her seizure activity. I have been told we will get transferred to Cornell as they have a special team for seizures capable of following the seizures live 24/7. It’s been a really long day and we are hoping for her to get better. Will keep you posted and I thank you for your prayers and support.