Josephine did it again. After almost eight weeks, finally left the PICU when nobody thought she would. The PICU team of doctors and nurses were really good to her and we thank them for that. She had more periods of awakening and seems to be aware of the transfer to Children’s Specialized. She is still not interacting but rather receptive of touch, and sounds. She will be having a lot of stimulation with physical and occupational therapy, bathing, and a busy day overall. My goal is to become an expert at changing her inner trachea tube, and maintenance of her feeding tube. I expect to have the help of nurses once we go home, but I need to know what to do in the event that I don’t have help.
The transition from Cornell ‘s PICU to Children’s Specialized acute rehab went smoothly so far and we are feeling tired and grateful tonight. God is meeting our needs one day at the time.
Thank you all for your prayers and support, and for following up.