I hope everyone is well getting ready for the holidays. We are too and all I hope for is to have all my children with me. Since our last update, Josephine's baseline has not changed. I was concerned with a constant coughing accompanied by lots of phlegm that wasn’t going away. Breathing patterns were weird....I took her for chest X-ray and came back clean. They were unable to accommodate for an MRI to see what’s going at the source, so we moved up our trip to Monterrey.
The MRI shows the ventricles' problem continues to be under control, which is good. However, there has been some progression derived from the pons...we are at the eleventh month marker since the symptoms started back in January of this year, and the ninth month marker since diagnosis.
The doctors in Monterrey recommended to do the treatments closer together every 20 days for a couple of months and see if we can stop this progression.
I have been able to treat the cold with over the counter medication and the phlegm situation is better. She is also breathing better.
Josephine received intra arterial and Omaya catheter treatment on Monday 11/5. She also received a second treatment thru the Omaya catheter yesterday 11/09, as the chemotherapy going thru the Omaya also irrigates the other areas of concern derived from the pons...
I try to provide as many details as I can because I know the information is especially useful to other sleepless parents going thru the same nightmare. But do not hesitate to contact me directly if I can be of any help or I can answer questions.
We are hoping these treatment approaches will give positive results and we can celebrate Thanksgiving and Christmas with Josephine.
Thank you so much for your continued support and please share if you can as we need your help more than ever. God bless you all.