12/14/2021 0 Comments September 17, 2018It has been a roller coaster since our last update...things can change drastically from one day to the other. Josephine’s ventricles received another chemotherapy thru the catheter on Thursday, September 13th. It’s an aggressive growth so the treatment needs to be aggressive. Tumors don’t like that. We tried to distract Pepa’s discomfort by going out on Friday. We came across with a place where Pep wanted to try zip-lining for the first time. I don’t deny her of anything she wants to do as long she feels up to the task. She really enjoyed the place and the distraction. The next day, Saturday 9/15, we were flying back and Josephine felt poorly having to request a wheel chair at the airport. This was very unusual as she had refused to use wheelchairs in the past when she needed assistance. I noticed she wasn’t as responsive when we stopped in Houston to change plane to Newark. Called the Doctor in Monterrey who advised to treat her with steroids and to take her to ER as soon as we got home. We went to Columbia Presbyterian in NYC directly from the airport with concern about a potential hydrocephalus. It turned out the tumors in the ventricles are causing what’s called “absence seizures” according to the EEG tests that were done at the hospital. This is currently being treated with medication. At this point Pep needs assistance and supervision 24/7 to eat, walk, and do anything. The MRIs reveal the tumors are growing at high speed needing a combination of treatments. Today 9/17, met with the radiology team at the hospital, Josephine was measured to start radiation in the ventricles next week for a course of ten sessions. This will be done in addition to the chemotherapy she is currently getting in Monterrey every month, after a two weeks wash period from the last chemo. The fight is intense and unfair, but we will never give up on Pepa. Thank you all for your prayers and support. We are hanging in there...
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