Hope everyone is well enjoying your weekend. We are good here with Josephine in Monterrey. She received her second intra arterial chemotherapy and her first chemotherapy in the ventricles thru the Omaya catheter installed in 8/29. There was no need for a spinal tap because of the Omaya catheter being in place to infuse the medication in the ventricles which in turn circulates in the spine as well. We are hoping we'll be able to slow down or stop the monster progression taking place in the ventricles. We noticed some improvement in her eye problems (strabismus). We are hoping to see improvement in other areas too...
There is a concern about hydrocephalus due to the aggressive treatment with so much progression going on. We are thinking the possibility of radiation in the ventricles in addition to all of the above. This would help too.
We are very happy to keep fighting for our girl because she loves life. I always said Pepa knows how to live...she really does love everything and everybody. She is putting all of herself in this fight and she is hopeful too.
Thank you all and please continue to helps us with this campaign by sharing and asking for donations if you can. These treatments come with a big tag, but we are thankful they are available....I felt devastated with the lack of options at home. What would you do?